self-advocacy


Linda Howard’s note:  This is from an email I received this morning.  The first part of the entry contains comments  from Richard Stimson regarding the article.  I quoted the entire article but I also referenced it.  Go to the original article  to input your comments with the Miami Herald.

You know, it is like a horror movie, every time you think things have gotten as bad as they can, it gets worst.  This is the Miami Herald and they sound like they are supporting Governor Scott.

First statement in RED by Kingsley Ross – Is this saying agencies will stop providing services?  I got an email from another FARF person that said something similar.  It basically said at these rates services could not be provided in a safe way.

First statement in GREEN by Brian Burgess – Is this saying that these cuts are this bad because of what happen in the past?  I think so.  Also from reading the article it appears they blame all of the appeals too (see second part in GREEN).  I also find the word use of “neediest” interesting.  I do not think they are talking financially because all waiver clients are on Medicaid.  I think they are talking about a new way to prioritize who gets services.  What would that look like?  Folks in Group Homes?  What happens to those in supportive living?

First statement in PURPLE by Miami Herald – Makes it sound like Scott had no other choice.  He had to do this.  I would take this to mean that the paper thinks Scott is within his authority to do this as an Emergency Rule!

Linda Howard note:  This is an article is from the Miami Herald.  Here is the web address.  Go there to input your comments regarding this latest action:

 http://www.miamiherald.com/2011/03/30/2142265_gov-scott-to-call-for-deep-cuts.html#storylink=addthis

AGENCY FOR PERSONS WITH DISABILITIES

Gov. Scott to call for deep cuts at agency for disabled

A $170 million deficit in the agency that serves the most needy in Florida has left Gov. Rick Scott with a tough call.

By Marc Caputo

TALLAHASSEE — Due to a shockingly large deficit, Gov. Rick Scott is planning to invoke his emergency powers and make deep cuts to the rates charged by group homes and case workers who help the developmentally disabled.

Scott could announce a 15 percent rate cut as early as Thursday to close the $170 million budget gap in the Agency for Persons with Disabilities, according to lawmakers who were briefed Wednesday.

The deficit — which exceeds the agency’s spending authority by nearly 20 percent — is partly the legacy of lawsuits, poor planning by the Legislature and a nearly $20 million veto by Scott’s predecessor, Charlie Crist, who starved the program of savings when he refused to trim provider rates last summer.

SYSTEM SHUTDOWN

Those who provide services to the nearly 30,000 Floridians with cerebral palsy, autism and Down Syndrome said they aren’t concerned with the origin of the deficit as much as the effect of deep rate cuts.

“This would be a catastrophe,” said Kingsley Ross, an advocate and lobbyist for Sunrise Community, a Miami-based group home operator.

For the past three years, Ross said, providers have shouldered rate cuts. They’re now operating on the thinnest of margins.

“The system can’t take this,” Ross said. “Eventually, we will have to cut jobs and reduce services.”

Scott’s spokesman, Brian Burgess, said the governor doesn’t want to harm the developmentally disabled. However, he said the state has put off tough choices for too long and the bill is due.

Burgess said paring the budget now will put the state in a better position to pay future expenses on the neediest. “Yes it’s painful,” Burgess said. “But we’re trying to alleviate the pain long term.”

Florida has a constitutional requirement for a balanced budget, but federally created Medicaid-related entitlement programs can go into deficit from time to time if the number of recipients increases or costs for needed services rise.

The Legislature estimated that next year the entire state budget will have a $3.75 billion shortfall. So lawmakers are trimming programs.

Troubled by the deficit in the Agency for Persons with Disabilities, Scott ordered an inquiry. The results of the investigation are scheduled to be released Thursday.

RECIPE FOR DISASTER

The Legislature tried to cut the program for the developmentally disabled last year, but Gov. Crist refused. He vetoed a 2.5 percent provider rate reduction.

Meantime, lawmakers didn’t budget enough money for the program to account for the fact that thousands of recipients had sued to block a system of service reductions and cuts to the program.

When times were flush five years ago, legislators expanded the rolls of the Medicaid program by about 5,000 — a move that brought cheers from advocates for the disabled. They had fretted that about 15,000 developmentally-disabled people were on a waiting list but unable to receive services.

But the waiting list has only grown. Medical costs have increased. But state tax collections plummeted and then flat-lined.

Add all those factors together, and the deficit in the $850 million program for the developmentally disabled is about $170 million, according to the Florida House’s proposed budget. The budget proposes to fix this year’s deficit by shifting money from special accounts. But the Senate offers no such solution, leaving Gov. Scott few choices. Neither he nor his fellow Republicans want to raise taxes to fill the deficit.

Scott’s proposal to reduce rates by 15 percent should save about $34 million. The rest of the deficit would be plugged by shifting agency money and reducing the rates of South Florida providers who get slightly higher reimbursements.

Sen. Joe Negron, a Stuart Republican who chairs the Senate’s health budget committee, and Rep. Matt Hudson, chairman of the House health budget committee, said they were briefed on the plan and support Scott.

 To record your input with the Miami Herald, please go to:  http://www.miamiherald.com/2011/03/30/2142265_gov-scott-to-call-for-deep-cuts.html#storylink=addthis

After a hard day of advocacy in Tallahassee meeting with legislators, People First takes a break.

I received this e-mail from Laura Moheskey regarding the Florida DD waiver changes proposed by the state legislators.
 
Subject: Call to action
You are receiving an email from me because of one of the following reasons: You are a consumer or a family member of someone on the D.D. waiver OR you are a provider/agency that works with the D.D. waiver. Either way, this is an important email and I am asking you to PLEASE take some time and RESPOND to the CALL.

On Monday, I will be going to Tallahassee with a group called Peoples First of Brevard. This group is set up of individuals who are self advocates. My role is to only assist them and give guidance. It will be our third trip since November. Each time we go, we have had the opportunity to speak either in front of the Senate or the House. I believe this group is now being taken seriously in our State’s Capital.

On the 15th, 16th, and 17th there will be meetings by the Senate Subcommittee on Health and Human Services Appropriations the subject matter: MEDICAID REFORM.

Reforming the Medicaid system will have a harsh impact on individuals who are disabled and on the D.D. Waiver.

I am asking each one of you to take some time to call and email the following Senators on Monday, Tuesday and Wednesday.. Please tell them “One Size Does Not Fit All – Leave the DD waiver alone – NO HMO’s. . Be prepared to leave your name and zip code when you call.

I know everyone is busy, don’t assume someone else will do this. There are 31,000 people on the D.D. waiver. Emails are going around the State this weekend. If only a handful of folks do this then we might as well fold up now. The impact has to be HUGE.

Individuals who are disabled need a voice. Please let it be yours.

Thank you
Laura Mohesky

Here are the Senators on the Subcommittee on Health and Human Services Appropriations and contact info.:

Sen. Negron, Chair; Rep. http://www.facebook.com/l/288a8xoSJsZ6fJnZjXrpODgWTcQ;negron.joe.web@flsenate.gov

 1-888-759-0791

Sen. Rich, Vice Chair; Dem. http://www.facebook.com/l/288a83cSvzpvIUk5Wpf9VsfjhLA;rich.nan.web@flsenate.gov

1-850-487-5103

Sen. Gaetz, Rep.

http://www.facebook.com/l/288a8jR8p58zEGXul7iiPkCl_aA;gaetz.don.web@flsenate.gov

1-866-450-4366

Sen. Garcia, Rep.

http://www.facebook.com/l/288a88dtZCn5LcBue_gAaZmuarw;garcia.rene.web@flsenate.gov 1-850 -487-5106

Sen. Oelrich, Rep. http://www.facebook.com/l/288a84aAvehRK2Ye4VBeyxCcCiw;oelrich.steve.web@flsenate.gov

1-850 -487-5020

Sen. Richter, Rep. http://www.facebook.com/l/288a80sz_sOeSKuk1HgHVDrH_pw;richter.garrett.web@flsenate.gov

1- 850- 487-5124

Sen. Sobel Dem.,

http://www.facebook.com/l/288a8WXzC-xbWzfDFJ2ZssAE6IA;sobel.eleanor.web@flsenate.gov

1- 850-487-509

The Networks Self-Advocates traveled to Tallahassee to see the Florida legislators.  Here is several links to some of the articles their visit engendered.  The two people holding the sign are self-advocates from Titusville.

http://m.floridatoday.com/news.jsp?key=361250&rc=ne

http://miamiherald.typepad.com/nakedpolitics/2010/11/as-senate-opens-medicaid-reform-hearings-potential-clients-worry-about-hmos.html

http://www.tallahassee.com/article/20101118/CAPITOLNEWS/11180322/Lawmakers-take-on-Medicaid-reforms
http://floridacapitalnews.com/article/20101118/CAPITOLNEWS/11180322&theme=
http://staugustine.com/news/local-news/2010-11-18/lawmakers-mull-medicaid-overhaul
http://floridaindependent.com/15175/lawmakers-weigh-plans-for-medicaid-overhaul
http://www.pnj.com/article/20101118/NEWS01/11180320/Legislators-dive-into-Medicaid-reform

FLORIDA UNITED FOR CHOICE –

________________________________________________________________________

WHY INCLUDING THE DEVELOPMENTALLY DISABLED OF FLORIDA INTO AN HMO MODEL IS NOT GOING TO WORK:

*We are fundamentally opposed to the aspect of Medicaid Reform that entrusts the coordination and care of the developmentally disabled of Florida to Health Maintenance Organizations (HMO’s). The current system of identifying, providing, overseeing, and funding of needed supports and services to the disabled of the state involves thousands of private contract HCBS Medicaid Waiver support and service providers who advocate for the needs of their caseloads and strive to get the needs of the developmentally disabled citizens of the State met. These providers work in concert with the state’s Agency for Persons with

Disabilities (APD) playing a significant role in quality assurance and oversight of the system. Surrendering the entire service system over to contracted HMO’s would eliminate choice, eliminate adequate oversight, and it would create a system nearly impossible for a developmentally disabled citizen and/or their family to navigate. Our reasons for opposing an HMO take over of the support and services system for the developmentally disabled of Florida are:

HMO is Not the Model That Best Serves the Developmentally Disabled Population

*There is something fundamentally different about being developmentally disabled versus any other kind of public assistance recipient — HMO is not geared for them.*

  • · Developmentally disabled (“DD”) recipients had absolutely no choice being born with their conditions and situations. They made no mistakes, errors in judgment and the nature of their assistance is hardly ever temporary.
  • · They will need life long care and support from an established cadre of specialized providers knowledgeable in DD issues. This care involves much more than merely medical concerns.
  • · There are social, self-care and self-advocacy issues that are unique to them. Many are non-verbal and nearly all could not successfully understand and navigate an HMO’s 1-800 number access system nor be able to advocate for their own needs effectively against an HMO’s opposition to funding services. Disabled people are easily intimidated and confused. Frequently they are cared for by highly stressed single caregivers. Yet they are lumped together with non-disabled welfare recipients.
  • · 30,000 people with disabilities and their families including over 2.7 million other voting Floridians will be negatively impacted. HMOs and PPNs are based on a medical model not on the special needs of DD consumers.

 

CHOICE

The thousands of service providers in the current system are hired and fired by the recipients of services THEMSELVES.

  • · In other words, the disabled of Florida now have the greatest choice in the freest fair-market system anywhere in the country. They have an independent case manager–a Support Coordinator whom they can hire and fire–whose overriding responsibility is to advocate for their preferences, help them identify their needs, and then assist them in navigating many complex service systems.
  • · When a disabled recipient is unhappy with the service provider (Support Coordinator, Respite provider, Companion, etc.), they can immediately terminate them and then be assisted in interviewing and locating a replacement provider that will best meet their needs.
  • · Going to an HMO model would eliminate this choice-based fair-market model. It would require them to rely on an HMO-funded case manager—a case manager WITHIN the HMO itself to push for support and service approvals and navigate the HMO’s complex requirements for these service approvals. In other words the HMO-funded case manager would be tasked with advocating against his own employer on behalf of the disabled person. This represents a debilitating conflict of interest as the HMO’s essential concern is profit and that case manager works for them. HMO’s have no established history of dealing effectively with this inherent conflict.
  • · A developmentally disabled recipient would essentially go from a model offering thousands of providers to a small handful. Opting for an HMO take-over of services for the developmentally disabled of Florida removes choice for these citizens and needlessly eliminates the highly specialized providers that these disabled individuals have known for years, come to trust, and who have developed an accurate and effective understanding of them and their needs. *This is a process that takes years with this population and equates in many cases to their avoiding institutionalization. Eliminating the independent provider system in favor of approximately 4 HMO’s carving up the state eliminates the current independent advocate provider system. This represents removing independent third party advocacy for the most vulnerable, poor and disabled population of the state.

Fiscal Responsibility:

It is understood that the state is in difficult financial times and that spending must be reduced.

  • · The developmentally disabled of Florida and their caregivers as well as the provider system that works for them understand the need for a sustainable system. The current Agency for Persons with Disabilities

(APD) and HCBS Medicaid Waiver systems afford the state an effective infrastructure to enforce accountability and compress funding when times are tough.

  • · Rather than paying HMO’s a fully-funded contract UP FRONT for five years, the current system allows the state to enact reductions at any time until the economic situation improves. Simply put, the current system allows the Florida state government real, dynamic flexibility. (*You can tear pages out of the

Waiver Services Handbook but keep the book so that when you can you add those pages BACK IN.)

  • · The current ‘Tier system’ places recipients into capped budgets. This is a ready infrastructure that allows you to decrease budgets for individuals receiving services when you have no other choice because of the economic situation. And again, when the budget improves, you can increase the Tier budgets for recipients.
  • · Once in a contract with an HMO you are stuck with that system for 5 years, regardless of how well or poorly the HMO performs. Historical data throughout the history of HMO’s in this country shows it is extremely difficult and costly to recoup funding from them when improprieties are discovered.

________________________________________________________________

On Sunday, I received a “comment” from Iran regarding the “Give Us a King” entry of last week.  The words were simply, “Pray for revolution.”  My heart was torn.  Of course, I left the comment.  As all of us know the uprising in Iran has been driven and publicized by the most unconventional means.  Tweeter has played a big part.  The world has seen the young woman, Nada, who was killed while walking with her father and other shocking images transferred via cell phones.

Yet, my mind could not help but go back to a meeting that I was told about by a head of a ministry for mentally challenged persons living in another state.  He had attended this conference several years ago.  It was a Christian men’s rally and the emphasis was reconciliation with the black community.  There were prayers and forgiveness and confessions.  God moved in a powerful way.

This brief acquaintance of mine had come to Florida on his way home.  He had stopped to visit DisneyWorld with his family and to see what is happening in Central Florida in regard to ministry to people who are mentally challenged.  In the debriefing that often goes on after a large conference, the pastor sat quietly stoic.  His head was lowered and he rested his arms on this legs as he confided that in the midst of the meeting he was shaken because most of what was begin discussed is still openly and unashamedly happening to people who are mentally challenged. 

I am proud of President Barak Obama.  I’m a staunch conservative and I’m leery of most of the social programs that he supports; but I am incrdibly proud that we have a black president.   However, even he isn’t shy about using a degrading “Special Olympics” comparison.

From the highest offices to degrading movies and slang on the streets, the mentally challenged community still suffers the most degrading and ungodly discrimination.  And I wish it stopped there. 

 Again and again, the most vulnerable are chosen to receive the most budget cuts.  It is considered good social work to put a mentally challenged person, in a low rent apartment in extremely horrific parts of town, with little money and virtually no supports.  What other group of people in America would be victimized in this way? 

A couple of years ago, a good friend and a member of Special Gathering was encouraged by her supported living coach to move from her safe and secure Adult Living Facility (ALF) into another town in a section of that city which was considered the worst part of our county.  She was told that it would be good for her because she would be around younger people.  Her family and all her friends were against the move but her social worker wanted her to “taste the joys of real independence.” 

The first night Kathy’s next door neighbor was shoot and killed in a gun battle that took place in the hallway of the apartment complex.  Kathy became a virtual prisoner in her own apartment, afraid to even venture outside the door.  Her mother could no longer do the twice-weekly drop-in visits that meant so much to Kathy’s mental stability.  Because Kathy was wheel-chair bound, her family and friends could no longer rescue her when she fell.  911 was available but it wasn’t the same. 

Kathy found that the “young people” who lived in her apartment were prostitutes and criminals.  Their vile lifestyles were abhorrent to her.  Of course, she had lost her much-sought-after apartment in the ALF.  She had to endure the fear and danger of her new situation for more than a year before another apartment became available.   

This is only one story.  One incident.  However, it is an all too-common picture.  Yes.  Yes.  Yes.  There are responsible social workers but many of them are caught in a system that demands an inclusion paradigm above all other considerations. 

Therefore, my request today is pray for the non-revolution within the mentally challenged community.  These vulnerable people will never rebel.  They want approval and have few demands.  Pray for a most vulnerable people who suffer discrimination, abuse and wrong everyday and it isn’t in Iran.  It may even be in your state, in your city, in your community.

May 13, 2009    Volume 9, Issue 7          
                                                                            
                         Florida Developmental Disabilities Council, Inc.  
                          124 Marriott Drive, Suite 203, Tallahassee, FL    
                                            32301-2981                      
                        Phone: (850) 488-4180 / (800) 580-7801 ~ Fax: (850)
                          922-6702 ~ TDD (850) 488-0956 / (888) 488-8633    
                                        http://www.fddc.org/                                                                                 
                                                                            
                                                                            
                          Behavioral   Assistant  Services  and  Behavioral
                          Assessment Restored!
                             
                                                                            
                          The  Florida  Legislative Session is over and the
                          restoration   of   behavioral   services   is   a
                          highlight.    Providers    and    advocates   for
                          individuals with developmental disabilities found
                          a  way  to increase revenue to pay for behavioral
                          services.   Intermediate   Care   Facilities  for
                          individuals   with   developmental   disabilities
                          (ICF/DD)   Medicaid   providers   can  contribute
                          increased  revenue  toward  Medicaid  funding and
                          draw  down additional federal matching dollars by
                          assessing  quality  assessment fees. Other states
                          have  used  such  fees  to  serve  individuals in
                          waiver  programs. Florida stands to receive 10-13
                          million dollars in increased revenue by assessing
                          a  quality  assessment  fee  which may be how the
                          state  will pay for behavioral assistant services
                          and the Behavioral assessment service. Additional
                          highlights  that  were  included  in  the  budget
                          proviso  language for the Agency for Persons with
                          Disabilities (APD) included:                      
                                The  provision  that  the agency may expand
                                enrollment  in  the  Consumer Directed Care
                                Plus  Program  by  up to 2,500 individuals.
                                Any  savings  generated from this expansion
                                may be used to serve clients on the waiting
                                list.                                      
                                Consolidating    durable   and   consumable
                                medical   supplies   purchasing,  effective
                                January 1, 2010.                            
                          Flexible Benefits                                
                           Contingent on receiving required federal          
                          approvals, the Agency for Health Care            
                          Administration and APD may add a flexible benefit
                          service to each Home and Community-Based Services
                          Waiver administered by the agency. This service  
                          shall be self-directed and provide the choice to  
                          receive the flexible benefit service.The Fiscal  
                          Year 2009-10 amount of the service may not exceed
                          92 percent of the individual’s total projected    
                          Fiscal Year 2009-10 expenditures for adult day    
                          training, companion services, respite care,      
                          supported employment, supported living coaching,  
                          and in-home support services.                    
                          An individual may not be authorized to receive    
                          simultaneously the flexible benefit service and  
                          any of the following services: adult day          
                          training, companion services, respite care,      
                          supported employment, and supported living        
                          coaching, or in-home support services.            
                          The flexible benefit service may allow training  
                          for the individual or the person authorized to    
                          make decisions on behalf of the individual to    
                          ensure successful self-direction of flexible      
                          benefit services.                                
                                                                            
                          Also included in the proviso language is the      
                          shift to Individualized budgets;                  
                                                                            
                          Individualized Budgets
                           
                          APD, in consultation with the Agency for Health  
                          Care Administration, shall develop a plan to      
                          establish individual budgets for individuals      
                          enrolled in the home and community- based        
                          services waivers. The plan shall provide for the  
                          following:                                        
                                An equitable distribution of available      
                                resources among individuals based on an    
                                assessment process that includes client    
                                characteristics and a valid formal          
                                assessment instrument;                      
                                Client  choice  of  services  and providers
                                once the individual budget is determined;  
                                Any  formulas necessary to predict resource
                                needs and establish individual budgets;    
                                A   recommended   role  for  providers  and
                                support coordinators                        
                                during  the assessment process to avoid any
                                potential conflicts of interest;            
                                A proposed schedule for implementation; and
                                any suggested statutory revisions necessary
                                to implement individual budgets.            
                          The agency shall consider input from stakeholder  
                          groups, including self-advocates, family members,
                          service providers, waiver support coordinators,  
                          and advocacy organizations in developing the      
                          plan. The plan shall be delivered to the          
                          Governor, the chair of the Senate Policy and      
                          Steering Committee on Ways and Means, and the    
                          chair of the House Full Appropriations Council on
                          General Government and Healthcare no later than  
                          February 1, 2010.                                
                                                                            
                          SB 1660 Relating to Agency for Persons with      
                          Disabilities sponsor(s) by Peaden, Jr.  CS        
                          Sponsors: Health and Human
                       
                                                                            
                          HB 745 Relating to Prepaid Services for Parents  
                          of Children with Developmental Disabilities by    
                          Ford was added to this conforming bill. This      
                          language establishes a study group to determine  
                          the feasibility of creating a prepaid service    
                          plan for children with disabilities modeled after
                          the Florida prepaid college plan. The            
                          prepaidservice plan would allow funds to be paid  
                          into a fund on behalf of a child and would be    
                          used for vouchers for services to help the child  
                          to transition into the workforce. See more on    
                          this study group below.                          
                                                                            
                          The Senate language that prioritizes the wait    
                          list was accepted with an implementation date of  
                          July 2010 to allow an extra year for participant  
                          and family input through the rule workshop and    
                          rule promulgation process.                        
                                                                            
                          04/09/09 SENATE Placed on Calendar, on second    
                          reading                                          
                          Read Second Time; Read Third Time; Substituted    
                          for HB 5111; Passed (Vote: 116 Yeas / 0 Nays);    
                                                                            
                          Compare Bills                                    
                          HB 5111 – Relating to Agency for Persons with    
                          Disabilities by Human Services Appropriations    
                          Committee                                        
                                                                            
                          04/17/09 HOUSE Read Third Time; Amendments        
                          Withdrawn (618901, 641877); Substituted for SB    
                          1660; Laid on Table, Refer to SB 1660            
                                                                            
                          *******************************                  
                                                                            
                          SB 242 Relating to Autism Spectrum Disorder      
                          Screening for Minors by Ring
                     
                                                                            
                          In the Senate some of the Autism bills were      
                          combined by amendments to Senator Ring’s          
                          Immunization bill SB 242. Senator Bennett offered
                          several amendments that were accepted with the    
                          Senator’s assurances that the concerns that were  
                          offered during public testimony would be          
                          seriously considered for inclusion in the final  
                          bill. The amendments that were added to Senator  
                          Ring’s screening bill (below) include;            
                                The elimination of organic or inorganic    
                                mercury in excess of 0.1microgram per      
                                milliliter in childhood vaccines.          
                                The  right  for formal clarification of the
                                side  effects  etc.  of  childhood vaccines
                                that are outlined by the Center for Disease
                                Control.                                    
                                The  right to choose an alternative vaccine
                                schedule  in  consultation with a physician
                                as  long  as  vaccines are completed before
                                school starts.                              
                          04/21/09 SENATE temporarily postponed by Policy &
                          Steering    Committee    on    Ways   and   Means
                          05/11/09   SENATE   Died  in  Policy  &  Steering
                          Committee       on       Ways      and      Means
                          Companion                                    Bill
                          HB  0033  – Relating to Childhood Vaccinations by
                          Ambler                                            
                          05/08/09  HOUSE  Died in PreK-12 Policy Committee
                                                                            
                          *****************************                    
                                                                            
                                                                            
                          SB 308 – Relating to Developmental Disabilities  
                          by Ring CS Sponsors: Health Regulation Committee,
                          Banking and Insurance Committee                  
                                                                            
                          Summary                                          
                          This bill requires that a physician refer a minor
                          to an appropriate specialist for screening for    
                          autism spectrum disorder or other developmental  
                          disability and inform the parent or legal        
                          guardian of the right to direct access to that    
                          specialist under certain circumstances. Requires  
                          certain insurers and HMOs to provide direct      
                          patient access to an appropriate specialist for  
                          screening, evaluation of, or diagnosis for autism
                          spectrum disorder, etc. EFFECTIVE DATE:          
                          07/01/2009.                                      
                                                                            
                          04/24/09 SENATE Withdrawn from Policy & Steering  
                          Committee on Ways and Means; Placed on Calendar,  
                          on second reading; Placed on Special Order        
                          Calendar for 04/28/09                            
                          05/11/09 HOUSE Died in Committee on Insurance,    
                          Business, & Financial Affairs Policy (after being
                          referred back to this committee).                
                                                                            
                          Compare Bills                                    
                          HB 0089 – Relating to Autism by Precourt          
                          05/08/09 HOUSE Died in Insurance, Business &      
                          Financial Affairs Policy Committee                
                          ********************************                  
                          SB 2314 – Relating to Affordable Housing/Persons  
                          with Special Needs by Wise
                       
                                                                            
                          Summary                                          
                          This bill provides criteria relating to the      
                          distribution of proceeds from the excise tax on  
                          documents to increase housing accessibility for  
                          persons with special needs. The bill also        
                          provides additional policy guidelines under the  
                          state housing strategy for the development of    
                          programs for housing production or                
                          rehabilitation. The bill includes persons with    
                          special needs as a tenant group for specified    
                          purposes of the State Apartment Incentive Loan    
                          Program, etc. EFFECTIVE DATE: 07/01/2009.        
                                                                            
                          05/11/09 SENATE Died in Committee on Finance and  
                          Tax                                              
                                                                            
                          Compare Bills                                    
                          HB 1009 – Relating to Affordable Housing by      
                          Roberson (Y)                                      
                          05/01/09 HOUSE                                    
                          Indefinitely postponed and withdrawn from        
                          consideration                                    
                                                                            
                          *******************************                  
                                                                            
                          HB 353 by Porth                                  
                          Relating to McKay Scholarships for Students with  
                          Disabilities
                                     
                                                                            
                          Summary                                          
                          This bill authorizes students who receive certain
                          services under the Voluntary Pre- Kindergarten    
                          Program to receive the John M. McKay Scholarship.
                          This bill deletes the requirement that a student  
                          must have spent the prior school year in          
                          attendance at a Florida school.                  
                          The bill provides certain rights and requires    
                          information explaining the rights and            
                          responsibilities that parents, guardians and      
                          teachers have when they make certain decisions.  
                          The bill requires DOE to recommend training for  
                          school personnel in procedures for safe restraint
                          of students. The bill also requires a private    
                          school to refund scholarship payment under        
                          certain circumstances and permits students to    
                          receive scholarship services at locations other  
                          than a private school’s site under specified      
                          conditions.                                      
                          Alternative Sites for Instruction and Services –  
                          A student eligible for a scholarship under this  
                          section, including a student with autism spectrum
                          disorder who participates in the program for      
                          students who are homebound or hospitalized, may  
                          receive regular and direct instruction and        
                          services from a private school at a site other    
                          than the school’s physical location if the        
                          following criteria are met:                      
                                The student’s parent provides a notarized  
                                statement from the medical doctor or        
                                psychologist treating the student’s        
                                disability which certifies that the        
                                student’s welfare or the welfare of other  
                                students in the classroom will be          
                                jeopardized if the student is required to  
                                regularly attend class at the school’s      
                                physical location. The notarized statement  
                                must be:                                    
                                Annually provided to the department at      
                                least 60 days prior to the date of the      
                                first scholarship payment for each school  
                                year.                                      
                                Based on an annual review of the student’s  
                                disability by the student’s medical doctor  
                                or psychologist.                            
                          This bill was referred to the following          
                          committees in the House on 2/6/09:                
                          PreK-12 Policy Committee;                        
                          Education Policy Council;                        
                          Full Appropriations Council on Education and      
                          Economic Development                              
                          05/08/09 HOUSE Died in PreK-12 Policy Committee  
                                                                            
                          Companion Bill in the Senate;                    
                                                                            
                          SB 2478 by Gardiner                              
                          05/11/09 SENATE Died in Committee on Education    
                          Pre-K – 12                                        
                                                                            
                                                                            
                          SB 1124 – Relating to Community Residential Homes
                          by Altman Cosponsors: Deutch, Sobel              
                                                                            
                          Summary
                                         
                          This bill defines the term “planned residential  
                          community.”                                      
                          The bill provides that community residential      
                          homes that have six or fewer residents and are    
                          located within a planned residential community    
                          not be required to obtain local government        
                          approval regardless of their proximity to each    
                          other.                                            
                          The concern for advocates who oppose this bill is
                          that it opens up the option of congregate living  
                          as a licensed living opportunity for individuals  
                          with developmental disabilities. Advocates        
                          believe this option could lead to a return to    
                          segregated living that resembles many of the      
                          institutions that were closed in the last few    
                          decades.                                          
                          There is also the assertion that this would be an
                          inappropriate use of the Developmental Disability
                          Home and Community Based Waiver funding, a waiver
                          that is intended for inclusive community living.  
                          On the other hand, the bill’s proponents feel    
                          that they have a right to choose this option,    
                          have compared it to living in a golf community,  
                          and see these planned residential communities as  
                          safe alternatives that will provide the          
                          individuals living there with more social        
                          opportunities and activities.                    
                          EFFECTIVE DATE: 07/01/2009.                      
                                                                            
                          04/29/09 HOUSE Substituted for HB 0371;          
                          Amendment(s) pending; Temporarily Postponed on    
                          Second Reading; Placed on Unfinished Business    
                          05/11/09 HOUSE Died on Calendar                  
                                                                            
                          Identical bill HB 371 by Stargel Cosponsors:      
                          McKeel and CS Sponsors: Military & Local Affairs  
                          Policy Committee                                  
                                                                            
                          04/29/09 HOUSE Read Second Time; Substituted for  
                          SB 1124; Laid on Table, Refer to SB 1124          
                                                                            
                          SB 2480 – Relating to Schools/Students with      
                          Disabilities/Restraint by Gardiner -Cosponsors:  
                          Fasano                                            
                                                                            
                          Summary
                                         
                          This bill prohibits school personnel from        
                          manually physically restraining a student with    
                          disabilities. The bill provides an exception in  
                          emergency cases when there is an imminent and    
                          significant threat to the physical safety of the  
                          student or others. The bill prohibits mechanical  
                          restraint, prone restraint, and requires parental
                          notification.                                    
                          03/12/09 SENATE Referred to Education Pre-K – 12;
                          Education Pre-K – 12 Appropriations              
                          Never Heard in Committee                          
                                                                            
                          Identical Bills                                  
                          HB 1449 – Relating to Use of Restraint and        
                          Seclusion on Students with Disabilities in Public
                          Schools by Sachs                                  
                          05/01/09 HOUSE Indefinitely postponed and        
                          withdrawn from consideration                      
                                                                            
                          SB 642 Relating to Autism License Plates and      
                          Autism Programs                                  
                          By Altman                                                                                                                    
                          Summary                                          
                          This bill creates an Autism license plate and    
                          provides for distribution of use fees received    
                          from sale of these plates; the renewal of        
                          registration would include language permitting    
                          voluntary contribution to the Autism License      
                          Plate Fund.                                      
                          The fee for the Autism license plate will be      
                          $25.The proceeds from the license plate annual    
                          use fee shall be distributed to Achievement and  
                          Rehabilitation Centers, Inc., to fund service    
                          programs for autism and related disabilities      
                          throughout the state and to operate and establish
                          programs to support individuals with autism and  
                          related disabilities through direct services,    
                          evaluation, training, and awareness.              
                          Achievement and Rehabilitation Centers, Inc.      
                          shall establish an Autism Services Grant Council  
                          that shall provide grants from available Autism  
                          license plate proceeds to nonprofit organizations
                          for direct services and programs for individuals  
                          with autism and related disabilities and their    
                          families.                                        
                          Consideration for participation in such services  
                          and programs shall be given to applicants who are
                          children or adults with autism and related        
                          disabilities and their families and shall include
                          those who are on the Agency for Persons with      
                          Disabilities waiting lists for services.          
                          Achievement and Rehabilitation Centers, Inc.,    
                          shall also establish an Autism License Plate      
                          Fund.                                            
                          Thirty-five percent of the proceeds from the      
                          annual use fee shall be used to establish and    
                          operate programs to support individuals with      
                          autism and related disabilities and their        
                          families through direct services, evaluation,    
                          training, and awareness in the state.            
                          The Center for Autism and Related Disabilities at
                          the University of Miami shall receive 15 percent  
                          of the proceeds from the annual use fee for      
                          distribution, as determined appropriate by the    
                          director of that center, to the seven regional    
                          autism centers. The regional centers shall use    
                          the proceeds to support the services they        
                          provide.                                          
                                                                            
                          The remaining proceeds from the annual use fee    
                          shall be available to the Autism Services Grant  
                          Council for grants to nonprofit organizations to  
                          operate direct services programs for individuals  
                          with autism and related disabilities and their    
                          families and for marketing the Autism license    
                          plate. Effective Date: July 1, 2009.              
                                                                            
                          05/01/09 SENATE Temporarily Postponed on Third    
                          Reading                                          
                                                                            
                          The Autism license plate bill language was added  
                          to conforming language during the last day of    
                          budget conference meetings!                      
                                                                            
                          SB 348 – Relating to Medicaid Buy-in              
                          Program/Persons with Disabilities – 2009 by Crist
                                                                            
                                                                            
                          Summary
                                         
                          The original bill provided for Medicaid          
                          eligibility for certain persons with disabilities
                          under a Medicaid buy-in program, subject to      
                          specific federal authorization. The proposed Work
                          Incentive Medicaid Coverage program would        
                          continue to offer Medicaid coverage to people    
                          with disabilities who are working. Once they      
                          enrolled in the program they would have the      
                          opportunity to earn more and save more than the  
                          allowable limits for regular Medicaid and still  
                          retain their health care coverage through the    
                          State’s Medicaid Program.                        
                          This bill was changed to form a workgroup to      
                          hammer out more details on how to implement this  
                          program.                                          
                          The group would have required that the four      
                          relevant state agencies sit down and work on the  
                          best way to implement this program in Florida.    
                          The bill passed through two Committees in the    
                          Senate and was withdrawn from one committee. The  
                          bill was never heard on the House side.          
                                                                            
                          EFFECTIVE DATE: 07/01/2009.                      
                          Filed                                            
                          03/23/09 SENATE Reference to Health and Human    
                          Services Appropriations removed; remaining        
                          reference: Policy & Steering Committee on Ways    
                          and Means; Now in Policy & Steering Committee on  
                          Ways and Means                                    
                                                                            
                          Similar HB 0529 – Relating to Optional Payments  
                          for Medical Assistance by Planas                  
                                                                            
                          05/01/09 HOUSE Indefinitely postponed and        
                          withdrawn from consideration                      
                                                                            
                          HB 745 – Relating to Prepaid Services for Parents
                          of Children with Developmental Disabilities –    
                          By Ford                                          
                                                                            
                          Summary
                                         
                          This bill establishes a study group to determine  
                          the feasibility of creating a prepaid service    
                          plan for children with disabilities modeled after
                          the Florida prepaid college plan. The            
                          prepaidservice plan would allow funds to be paid  
                          into a fund on behalf of a child and would be    
                          used for vouchers for services to help the child  
                          to transition into the workforce. In addition,    
                          the bill specifies membership of the study group  
                          to include members of the legislature, the        
                          directors of the Agency for Persons With          
                          Disabilities (APD), the Division of Vocational    
                          Rehabilitation (DVR or division), and the State  
                          Board of Administration (SBA), the executive      
                          director of Arc of Florida (ARC/Florida), the    
                          chairperson of the Family Care Council/Florida,  
                          and a parent representative from a local Family  
                          Care Council. The bill provides that              
                          administrative support for the study group will  
                          be provided by APD and  requires the study group  
                          to submit a final report to the Legislature no    
                          later than January 29, 2010, and that the study  
                          group will be abolished upon submission of the    
                          final report. The final report will address      
                          services for which a voucher could be used,      
                          financial requirements, qualifications of service
                          providers and steps necessary to qualify this    
                          plan for a federal waiver program that would      
                          allow for federal financial participation. It is  
                          anticipated there will be an indeterminate, but  
                          insignificant, fiscal impact for travel expenses  
                          of the study group; provides for per diem &      
                          travel expenses for members; requires study group
                          topresent final report to Legislature. Effective  
                          Date: July 1, 2009                                
                                                                            
                          04/27/09 HOUSE Read Third Time; Passed (Vote: 118
                          Yeas / 0 Nays); In Senate Messages                
                                                                            
                          Identical Bills                                  
                          SB 1278 – Relating to Children with              
                          Disabilities/Prepaid Service Plan by Altman      
                                                                            
                          Added to the conforming bill SB 1660 in the      
                          budget conference period!                        
                                                              
                                                                            
                        Margaret J. Hooper, MSW, Public Policy Coordinator

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